"The Governance of Biobanks in the Digital Society" explores the evolving role of biobanks within data-driven biomedical research, spotlighting the ethical, legal, and societal challenges. The book conceptualizes a model for biobank governance, emphasizing transparency, data protection, and public participation. Bridging gaps between existing regulations and ethical guidelines, it proposes solutions to unsolved bioethical issues by redefining governance from a participant-data perspective.
Rooted in bioethical principles, this framework aims at effective integration with digital innovations while safeguarding constitutional values and public trust.
The book offer:
- Conceptualizes an ethical governance framework for biobanks.
- Aligns biobank governance with the digital health data paradigm.
- Advocates for transparency, data protection, and inclusive participation.
